Frequently Asked Questions about Joining

If you have a question about joining the UW Twin Registry that has not been answered here, please call us 1-888-223-0868 or email* us at  uwtwins@uw.edu. 

*We cannot guarantee the confidentiality of any information sent via email

Why Join the UW Twin Registry?

What does it mean to be a UW Twin Registry member?

What are the benefits of joining the UW Twin Registry?

 

Joining the UW Twin Registry

Why didn’t my twin also receive an invitation to join the UW Twin Registry?

We are adult twins who live in Washington but neither of us received an invitation. Can we join the UW Twin Registry?

Can my twin and I join if we are fraternal twins?

Can my twin who lives outside of Washington or overseas still participate?

Can I join the UW Twin Registry if my twin is deceased or not interested in joining?

Can I join the UW Twin Registry if I am not in contact with my twin?

Can triplets or higher-order multiples join the UW Twin Registry?

Are we too old to join the UW Twin Registry?

Can I enroll my twin children in the UW Twin Registry?

Can twins living outside Washington State join the UW Twin Registry?

Are there different ways that I can complete the enrollment survey?

 

Being a Member of the UW Twin Registry

How often will I be contacted if I decide to join the UW Twin Registry?

How will I be chosen for a study?

What does a study invitation look like?

What types of studies does the UW Twin Registry conduct or facilitate?

What safeguards protect UW Twin Registry members who participate in research studies?

Will my twin and I get to learn if we are identical or fraternal?

Will I receive results from the study I participated in?

 

Personal Information and Privacy

How does the UW Twin Registry protect my privacy?
Who has access to my personal information?
Under what circumstances will my information be released?

How did the UW Twin Registry get my name and contact information?

Why does the DOL ask about twins?

Why does the UW Twin Registry ask for my twin’s contact information?

Why does the UW Twin Registry ask for my mother’s maiden name?

Do I have to give my social security number to the UW Twin Registry?

Do I have to answer all of the questions on the enrollment survey?